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“It all began with the bite of a mosquito. Yes, with a bite of this pesky, but seemingly so innocuous little insect that had been sucking her blood. Not just one, but hundreds had punctured her arms and legs with red marks which later swelled to small welts. Who would ever have thought that our family's life would become derailed, that its tightly woven fabric would eventually fray and break—all from the bite of a mosquito?” In November of 1970, the Finell family’s lives were changed forever by a family vacation to Acapulco. Seven-year-old Stephanie fell ill soon after their return to the United States, but her mother, Karin, thinking it was an intestinal disorder, kept her home from school for a few days. She was completely unprepared when Stephanie went into violent convulsions on a Friday morning. Following a series of tests at the hospital, doctors concluded she had contracted viral equine encephalitis while in Mexico. After a string of massive seizures—one leading to cardiac arrest—Stephanie fell into a six-week coma. When she awoke, her world had changed from predictable and comforting to one where the ground was shaking. Due to the swelling of her brain from encephalitis, she suffered serious brain damage. Doctors saw little hope of recovery for Stephanie and encouraged her parents to place her in an institution, but they refused. In Broken Butterfly, Karin Finell recounts the struggles faced by both her and her daughter, as well as the small victories won over the ensuing years. Little was known about brain injuries during that time, and Karin was forced to improvise, relying on her instincts, to treat Stephanie. Despite the toll on the family—alcoholism, divorce, and estrangement—Karin never gave up hope for Stephanie’s recovery. By chance, Karin heard of the Marianne Frostig Center of Educational Therapy, where Dr. Frostig herself took over the “reprogramming” of Stephanie’s brain. This, in time, led her to regain her speech and some motor skills. Unfortunately, Stephanie’s intermittent seizures hung like the proverbial “Sword of Damocles” over their lives. And while Stephanie grew into a lovely young woman, her lack of judgment resulting from her injury led her into situations of great danger that required Karin to rescue her. Karin’s love for her daughter guided her to allow Stephanie to fill her life with as many positive experiences as possible. Stephanie learned and matured through travel and exposure to music and plays,acquiring a knowledge she could not learn from books. Stephanie wished above all to teach other brain injured individuals to never look down on themselves but to live their lives to the fullest. Through Stephanie’s story, her mother has found a way to share that optimism and her lessons with the world.
Humorist Cathy Crimmins has written a deeply personal, wrenching, and often hilarious account of the effects of traumatic brain injury, not only on the victim, in this case her husband, but on the family. When her husband Alan is injured in a speedboat accident, Cathy Crimmins reluctantly assumes the role of caregiver and learns to cope with the person he has become. No longer the man who loved obscure Japanese cinema and wry humor, Crimmins' husband has emerged from the accident a childlike and unpredictable replica of his former self with a short attention span and a penchant for inane cartoons. Where Is the Mango Princess? is a breathtaking account that explores the very nature of personality-and the complexities of the heart. Outstanding Book Award Winner from the American Society of Journalists and Authors
Struggling to care for their daughter Willow, who was born with brittle bone disease, Charlotte and Sean O'Keefe add additional strain to their overburdened family life when they file a lawsuit against Charlotte's obstetrician.
Afghan-American Nadia Hashimi's literary debut novel is a searing tale of powerlessness, fate, and the freedom to control one's own fate that combines the cultural flavor and emotional resonance of the works of Khaled Hosseini, Jhumpa Lahiri, and Lisa See. In Kabul, 2007, with a drug-addicted father and no brothers, Rahima and her sisters can only sporadically attend school, and can rarely leave the house. Their only hope lies in the ancient custom of bacha posh, which allows young Rahima to dress and be treated as a boy until she is of marriageable age. As a son, she can attend school, go to the market, and chaperone her older sisters. But Rahima is not the first in her family to adopt this unusual custom. A century earlier, her great-great grandmother, Shekiba, left orphaned by an epidemic, saved herself and built a new life the same way. Crisscrossing in time, The Pearl the Broke Its Shell interweaves the tales of these two women separated by a century who share similar destinies. But what will happen once Rahima is of marriageable age? Will Shekiba always live as a man? And if Rahima cannot adapt to life as a bride, how will she survive?
Two teens are drawn together, trapped by the expectations of their dreaming mothers. One is sweet and empathetic, the other brilliant and charismatic - but damaged. A beautiful and twisted story of first love.
A surgical pathologist journeys into the microscopic world of cells as he explores their sometimes deadly influence on the lives of people affected by them, describing the implications of sickle cells on a young patient and his mother, the effects of breast cancer cells for Hanna, and the cells in the brain of a patient with Alzheimer's. Reprint. 15,000 first printing.
Concussion and Mild Brain Injury: Not Just Another Headline gives clear insight into how the lives of those suffering from concussion and mild brain injury (MBI) are impacted. The individual stories of injury, recovery and discovery document the effect of the survivor's MBI on immediate and extended family members, and social and work communities.These first-hand accounts of survivors of MBI in many facets of the community will bring tears, laughter and increased understanding, restoring hope that the ongoing challenges faced by the survivors in all walks of life can and will improve. Each story shows that MBI touches the lives of individuals from all strata of society, from the media famous to the relatively unknown.
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