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The first of its kind, this book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts. For example, the chapter on Poland describes how pediatric palliative care grew from the Catholic church into a national movement spearheaded by several health care workers. The Pole national spirit that brought them through a change in political regime has also been a driving force in the pediatric palliative care movement. The chapter on South Africa, for example, illustrates how a resource poor country has been able to leverage philanthropic and government funding to make its dream of having an infrastructure of pediatric palliative care a reality. These are just a few examples of the inspiring stories that are included in this book. Readers from countries who wish to start a pediatric palliative care program, or advance an existing program, will learn valuable lessons from others who have faced similar barriers. Introduction and concluding chapters highlight the strengths and weaknesses of the modern pediatric palliative care movement.
Advances in medical science and technology are saving the lives of more children worldwide than ever. Some will survive and live out a normal life expectancy, others will have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their health care systems are prepared. This book aims to open a global discussion of these issues. Drawing on author Rita Pfund's 2007 text Palliative Care Nursing of Children and Young People (Radcliffe Publishing) it invites paediatric palliative care professionals, parents and chidren from around the globe to share their knowledge and experience it will be of interest to paliative care professionals, parents, policy makers and academics who have an interest in ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
The definitive Oxford Textbook of Palliative Medicine, now in its fifth edition, has again been thoroughly updated to offer a truly global perspective in this field of extraordinary talent and thoughtfulness. Updated to include new sections devoted to assessment tools, care of patients with cancer, and the management of issues in the very young and the very old, this leading textbook covers all the new and emerging topics since its original publication in 1993. In addition, the multi-disciplinary natureof palliative care is emphasized throughout the book, covering areas from ethical and communication issues, the treatment of symptoms and the management of pain. The printed book is complemented with 12 months free access to the online version, which includes expanded chapter information and links from the references to primary research journal articles, ensuring this edition continues to be at the forefront of palliative medicine. This fifth edition of the Oxford Textbook of Palliative Medicine is dedicated to the memory of Professor Geoffrey Hanks, pioneer in the field of palliative medicine, and co-editor of the previous four editions. A truly comprehensive text, no hospital, hospice, palliative care service, or medicallibrary should be without this essential source of information.
This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike. The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed by the authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement. Interventions developed by the editors are provided in this book, such as the “Finding Balance Intervention” for bereaved caregivers; the “Reclaiming Yourself” tool for bereaved spouses of partners with dementia; and The Keeping Hope Possible Toolkit for families of children with life threatening and life limiting illnesses. The development and application of these theory-based interventions are also highlighted. Videos and vignettes written by family caregivers about what was helpful for them, provide a patient-and family-centered approach./div The book will benefit nursing students, educators and practicing registered nurses by providing information, theory, and evidence from research.
This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children
Two leading oncologists, along with experts spanning several medical disciplines, shed light on the global pandemic of cancer, particularly the difference in diagnosis, treatment, and care between global communities. • Includes a comprehensive and up-to-date review of the global epidemiology of the disease • Offers perspectives from contributors in fields of oncology, radiation, surgery, pharmacy, and public health • Reveals the 5 leading behavioral and dietary risks that contribute to 30 percent of all cancers worldwide • Examines how the HIV/AIDS and HPV epidemics have helped—and hurt—the fight against cancer globally
Trusted by generations of residents and practitioners, The Harriet Lane Handbook remains your first choice for fast, accurate information on pediatric diagnosis and treatment. The first medical reference book written "by residents, for residents" and reviewed by expert faculty at The Johns Hopkins Hospital, it continues to provide the gold standard in point-of-care clinical information for any health care professional treating pediatric patients. Consult this title on your favorite e-reader, conduct rapid searches, and adjust font sizes for optimal readability. Take advantage of the most dependable drug information available with thoroughly updated, one-of-a-kind Pediatric Formulary providing the standard of pediatric care from the leading pediatric hospital in the world. Trust thoroughly updated content that includes parameters for pediatric and neonatal septic shock; guidelines for acute management of severe traumatic brain injury; a convenient table detailing common genetic tests; a significantly extended collection of radiologic images; expanded mental health coverage; plus much more. Access information easily and quickly with reformatted sections designed make the book easier to use via mobile device.
Providing an in-depth look at the issues surrounding the palliative care of children and their families, this innovative text considers children with both malignant and non-malignant conditions, and the specialist care required. By addressing the complexities of providing palliative care to children, it aims to assist all those who work in this field to enhance their practice. Special features include: ■ broad research evidence, from national and international sources, on which to base practice ■ absorbing activities to support learning and help build knowledge in a meaningful way ■ interprofessional perspectives from the whole palliative care team The contributors to the book are drawn from both education and practice across a range of disciplines. The result is a genuinely engaging, interdisciplinary text that is essential reading for students and professionals aiming to deliver quality palliative care in partnership with children and their families.
The Harriet Lane Handbook represents over 50 years of expert guidance for pediatric residents and all those who treat children. This irreplaceable manual is your everyday reference for fast, accurate bedside consultation. The book’s trademark formulary will be regularly updated online, to keep you absolutely current. New or revised chapters on palliative care, toxicology, dermatology, and growth and nutrition help you streamline diagnosis and treatment. Still convenient and pocket-sized, this latest edition includes Expert Consult functionality, so you can access the complete contents of the book online, fully searchable. Remains a convenient, pocket-sized reference, so you can carry a wealth of information with you. Includes step-by-step emergency management protocols, growth charts, and more to help you streamline diagnosis and treatment. Organized in a modified outline format so you can find information quickly and easily, even in the most demanding circumstances. Provides a regularly updated trademark formulary online to help you get the latest on pediatric drugs and dosages. Adds a new palliative care chapter for more well-rounded guidance. Includes unprecedented access to the complete contents of the book online, completely searchable, with downloadable images. Incorporates the latest treatment and management recommendations, immunization guidelines, procedures, and therapeutic guidelines so you can stay completely up to date. Revises the toxicology and the growth and nutrition chapters to be even more user-friendly and practical. Reorganizes the dermatology chapter to make information even easier to find.
This manual enables individuals working in children’s palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC. Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children’s Palliative Care Network (ICPCN). Children’s palliative care is a rapidly developing field, both in the UK and internationally. The provision of CPC varies considerably, with provision often being insufficient, and over 65% of countries having no recognised CPC service provision whatsoever. As such, while there are an estimated 21.6 million children who require palliative care, in many areas of the world, CPC is poor or non-existent, and children are treated like little adults without their distinctive needs being recognised or understood. There is also a dearth of literature on CPC, hence this clinical case-based manual fills a gap in the market, and is aimed at a global audience, making it a unique text in the field.
APON's definitive work on the supportive care of children and adolescents with cancer provides an up-to-date, chapter-by-chapter assessment of common and rare diseases and their treatments. Important information on adolescents is now interspersed throughout the new edition, highlighting crucial differences in the care provided to this special population. New case studies with portraits of the patient have been included in each disease chapter to keep the focus on personalized care of the child. This new edition also includes Internet resources, a research mega-table listing three decades-worth of nursing studies in pediatric onology, completely updated pharmacology tables, and new chapters on Surgery, Oncological Emergencies, Complementary and Alternative Therapies, Home Care, Palliative Care, Research, and Ethical Issues Chapter 1, History, Issues, and Trends, highlights milestones in paediatric oncology nursing 120 illustrations and photographs provide visual reinforcement of issues and diseases discussed This text is endorsed the Association of Paediatric Oncology Nurses (APON), and edited and written by the foremost experts in the field - Case studies open each chapter in Part Four: Diseases, and include a photograph of the child or adolescent discussed therein - Chapters on Surgery, Oncological Emergencies, Complementary and Alternative Therapies, Home Care, Palliative Care, Research, and Ethical Issues - Web resources have been included where relevant to broaden the reader's access to the most current childhood cancer information - Research chapter contains a mega-table which lists the types of studies completed by paediatric oncology nurses in the last three decades. In it, the author(s), source, purpose, design/method, and findings are discussed. Completely updated pharmacological tables present new and common treatment modalities
Participatory research is a relatively new method of researching practice especially within palliative care. It differs from other methodologies in that there is an expectation of action within the research process. The values that underpin participatory research are collaboration, empowerment, and reflection. In the current climate of collaboration and working with people in healthcare, participatory research methods are gaining increasing interest when there is a desire to bring about change. Organisational change is becoming an important focus as we look at ways of not only reducing costs but at the same time improving quality of care. While palliative care puts the patient and family at the centre, Participatory Research in Palliative Care discusses a new research methodology that puts practitioners at the heart of the research process as collaborators who work together with researchers to resolve problems in practice. Divided into three sections, it provides theoretical groundings of action research, a greater focus on exemplars from studies within palliative care, and discusses prominent issues when using such a methodology. All three sections are illustrated by an action research study undertaken by the author within a palliative care setting. Participatory Research in Palliative Care is written by international, multi-disciplinary authors who explore a collaborative approach to embark on research. It will appeal to health and social care professionals, academics undertaking research within palliative care, and the management of organisations where people with end of life care needs are cared for, including long-term care homes.
Representing more than 50 years of expert guidance for pediatric residents and all those who treat children, this irreplaceable manual offers fast and accurate bedside consultation. Convenient and pocket-sized, this latest edition includes Expert Consult functionality, so users can access the complete contents of the book online.
Delivers the collective wisdom of foremost scholars and practitioners in the death and dying movement from its inception to the present. Written by luminaries who have shaped the field, this capstone book distills the collective wisdom of foremost scholars and practitioners who together have nearly a millennium of experience in the death and dying movement. The book bears witness to the evolution of the movement and presents the insights of its pioneers, eyewitnesses, and major contributors past and present. Its chapters address contemporary intellectual, institutional, and practice developments in thanatology: hospice and palliative care; funeral practice; death education; and caring of the dying, suicidal, bereaved, and traumatized. With a breadth and depth found in no other text on death, dying, and bereavement, the book disseminates the thinking of prominent authors William Worden, David Clark, Tony Walter, Robert Neimeyer, Charles Corr, Phyllis Silverman, Betty Davies, Therese A. Rando, Colin Murray Parkes, Kenneth Doka, Allan Kellehear, Sandra Bertman, Stephen Connor, Linda Goldman, Mary Vachon, and others. Their chapters discuss the most significant facets of early development, review important current work, and assess major challenges and hopes for the future in the areas of their expertise. A substantial chronology of important milestones in the contemporary movement introduces the book, frames the chapters to follow, and provides guidance for further, in-depth reading. The book first focuses on the interdisciplinary intellectual achievements that have formed the foundation of the field of thanatology. The section on institutional innovations encompasses contributions in hospice and palliative care of the dying and their families; funeral service; and death education. The section on practices addresses approaches to counseling and providing support for individuals, families, and communities on issues related to dying, bereavement, suicide, trauma, disaster, and caregiving. An Afterword identifies challenges and looks toward future developments that promise to sustain, further enrich, and strengthen the movement. KEY FEATURES: Distills the wisdom of pioneers in and major contributors to the contemporary death, dying, and bereavement movement Includes living witness accounts of the movement's evolution and important milestones Presents the best contemporary thinking in thanatology Describes contemporary institutional developments in hospice and palliative care, funeral practice, and death education Illuminates best practices in care of the dying, suicidal, bereaved, and traumatized
Social, psychological, and biological contexts affect an individual's response to pain, but the nature of familial, cultural, and ethnic factors is often obscured by stereo---typical thinking and poor methodology on the part of researchers. Contextual influences on pediatric pain merit special attention because early pain experiences potently affect later pain experiences. In this volume, international experts in pain research and treatment share their perspectives on these contextual factors and point the way toward future research.
Globalization is widely discussed in the social sciences, but has only recently permeated social work thinking and literature. This book argues that social professionals working locally need an understanding of global mechanisms and cross-cultural issues. Local level examples include the increase in victims of trafficking or the effects of HIV/AIDS on some immigrant groups. International examples include the risk to children moving across borders, the growth of international paedophile networks and the proliferation of terrorism. Social work is fundamentally being altered by the 'Internationalization' of social problems and this text discusses the implications for students and practitioners.
This revised edition equips students with up-to-date information on a variety of global health topics and perspectives. It prepares readers with a basic perspective of health policy issues in various geographical regions, and explains how they are affected by significant world events. Important Notice: The digital edition of this book is missing some of the images or content found in the physical edition.
This volume explores how hospice care has been taking root throughout much of the world and illustrates how people are finding ways to shape hospice care to the particular needs and resources of their countries and communities. The book begins with a hospice mission statement by Dame Cicely Saunders and is followed by an overview of the international hospice movement by Dr. Jan Stemsward of the World Health Organization. Included are reports from pioneering hospice programs in the Middle East, in tropical Africa, and Croatia.

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